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Government support for people with MND

People living with MND and their carers may be eligible for assistance and benefits from the government either through the National Disability Insurance Scheme (NDIS) or Aged Care.

Our MND Advisors will discuss access to government support in one of their first meetings with you.

What is the NDIS?

The NDIS has been described as the biggest social reform in Australia since Medicare. It is a no fault insurance scheme designed to recognise the ‘right’ of people to live as ‘ordinary’ a life possible and that support related to disability is an entitlement not a privilege. This ‘right’ however is extended only to people who acquire a disability before they turn 65 years of age. People 65 years and older may be able to access some support through Commonwealth Aged Care programs.

About the NDIS

On 1 July 2016, the NDIS began to roll out across Victoria and is being introduced in stages across the rest of the state until 1 January 2019 as per the table below.

Melbourne Metropolitan Area

Bayside Peninsula 1/04/18
Brimbank Melton 1/10/18
Hume Moreland 1/03/18
Inner East Melbourne 1/11/17
North East Melbourne 1/07/16
Outer East Melbourne 1/11/17
Southern Melbourne 1/09/18
Western Melbourne 1/10/18

Regional Victoria

Mallee 1/01/19
Loddon 1/05/17
Wimmera South West 1/10/17
Central Goldfields 1/01/17
Barwon 1/07/13
Goulburn 1/01/19
Ovens Murray 1/10/17
Outer Gippsland 1/01/19
Inner Gippsland 1/10/17

Accessing the NDIS

To be eligible for the NDIS you need to be:

  • an Australian citizen or permanent resident,
  • aged under 65 years,
  • have a permanent disability that significantly impacts their everyday functioning and participation in social activities and work OR
  • a person who the NDIS believes would benefit from early intervention.

What happens when you turn 65?

When you turn 65 you will have a choice of continuing with the NDIS or transferring to the aged care sector for your supports.

Participant

This is the word used by the NDIS for individuals who meet the NDIS access criteria and begin to take part in NDIS.

Participant Plan

The NDIS Plan is developed by the Local Area Coordinator (LAC) or NDIS Planner.  The NDIS LAC or planner will make an initial telephone call to you to establish basic details and gather information to inform the development of your first plan.  You or your representative can request a face to face visit to undertake the planning conversation rather than have it conducted over the telephone. You are also able to advise the LAC or planner of the person/s you wish to have with you at the planning conversation.  We strongly recommend that you have your MND Advisor present whether the conversation is conducted face to face or via the telephone.

During the planning conversation the planner will work with you and your family to identify your support needs and how you wish to live your life. These supports can be what is needed immediately, but may also include supports that are likely to needed in the foreseeable future.  Some supports may address safety issues for you, your family and carers, such as the need for certain types of equipment.  With planning comes a budget to purchase the supports and services documented in your plan.

To ensure the plan is appropriate, it is important that you think about and discuss your situation and how you wish to live your life with the relevant people, prior to the planning conversation.  These people may be your family and significant others.  It is important that it also includes the MND Advisor as she/he, with considerable experience, understands MND, its impact and the importance of planning for the future.  We have also developed a resource to assist you with your decision making.

Support Provider

A support provider is a person or an organisation that delivers support to NDIS participants. The participant can choose the agencies or people that they want to deliver the supports documented in the plan.

MND Victoria and the NDIS

MND Victoria is a registered NDIS support provider and has been providing support coordination through our MND Advisors and assistive technology (the NDIS preferred name for aids and equipment) via our equipment service to NDIS participants living with MND since the NDIS trail commenced in Barwon in July 2013.  We continue to provide these supports as the NDIS rolls out across Victoria, Tasmania and along the Victorian/NSW border.

If you would like more information about MND Victoria and the NDIS please talk to your MND Advisor or contact us on 98302122 or This email address is being protected from spambots. You need JavaScript enabled to view it..

For further information about the NDIS including access, roll out dates and information packs including videos and maps, please visit the relevant state NDIS page on the NDIS website or phone 1800 800 110.

Aged Care

Aged care services and support is accessed through My Aged Care.  This is the entry point for all people 65 years of age and older who require support and services to assist them to live the best life possible.
My Aged Care

My Aged Care is a national online and phone service to help people find out about aged care services, and what services may be available to help them.  These supports include help at home, personal and nursing care and meals.

My Aged Care can be contacted by telephone on 1800 200 422 or through the My Aged Care website.

MND Victoria and My Aged Care

People living with MND who are clients of MND Victoria and receiving support through My Aged Care services are able to access the suite of services provided by MND Victoria.  This includes the MND Advisor, equipment and information services.

Your MND Advisor or the MND Victoria Information team can provide more information about My Aged Care, the importance of planning for the future and the most likely supports required by people living with MND.

If you would like more information about MND Victoria and My Aged Care please talk to your MND Advisor or contact us on 98302122 or This email address is being protected from spambots. You need JavaScript enabled to view it.