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About MND
Some Facts
Introduction
What Is Motor Neurone Disease (MND)
What are the symptoms?
How is MND diagnosed?
What remains unaffected?
Is there a cure or treatment for MND?
What can be done?
Where can I find further information?
More Facts
Introduction
What is Motor Neurone Disease?
What are the symptoms?
How is it diagnosed?
What causes MND?
Is it hereditary?
Can other people catch it?
What forms does MND take?
How common is it?
What remains unaffected by MND?
Is Motor Neurone Disease painful?
Are there alternatives to medication for dealing with pain and anxiety?
Is there a cure or treatment?
What Health Professionals may be of assistance?
Will I Develop Mobility Problems?
Fatigue
Sleep
Will there be breathing difficulties?
Will there be swallowing problems?
If I need aids and equipment where can I get them?
What financial assistance is available?
What support is available for carers?
Booklet
Acknowledgements
Treatment
Just For Kids
Introduction
What is MND?
What parts of the body are affected by MND?
Other ways in which MND may affect people.
What causes it?
Do children get it?
Will I get it when I am an adult?
Do people die because they have MND?
Your feelings.
Things to do in the future.
Acknowledgments.
Kennedy's Disease
Kennedys Disease (or X-Linked Spinal and Bulbar Muscular Atrophy)
What are the symptoms?
Is It Hereditary and What Causes It?
How Is It Diagnosed?
Is There Any Treatment?
Reference and Disclaimer
Download Factsheet
Genetic Testing For MND
Introduction
What is MND?
Current Research
Relevance Of The Discovery Of The SOD1 Gene
Some Issues Associated With Testing For SOD1 Mutations
Can Children Be Tested?
Testing Must Be Voluntary
FAQ (Frequently Asked Questions)
Further Info
The MND Associations - What Role Do They Play?
Genetic Services
Acknowledgements
Download factsheet
About Us
Vision/ Objectives
Services
Information
Regional Advisors
Aids and Equipment
Volunteers
The Organisation
Funding
Activities
Living with MND
Physical Needs
Introduction
Moving About
Tiredness
Insomnia
Breathlessness
Cold Limbs
Swelling of the Feet and Legs
Pain, Stiffness and Cramp
Neck Weakness
Arm Function
Emotional Needs
Introduction
Depression
Worry
Inappropriate Laughing and Crying
Sex
General Health
Introduction
Diet and Weight
Bladder and Bowel Health
Personal Care
Introduction
Toilet (inc. toilet aids)
Bathing (inc. bathing aids)
Hair Care
Ear Care
Eye Care
Mouth and Tooth Care
Nail Care
Shaving
Dressing
Eating/Drinking
Home Comfort
Introduction
Chairs
Beds
Working Height
Tools and Utensils
Light and Power
Alarms, Intercoms and Computers
Environmental Controls
Door knobs and Locks
Telephones
Carrying
Rec & Leisure
Introduction
Overview
Reading
Talking Books
Electronic Entertainment
Painting
Writing
Typewriters and Computers
Sewing and Craftwork
Cards and Boardgames
Sport
Birds
Parks
Research
Glossary of Terms
What can you do?
Introduction
The Motor Neurone Disease Research Institute of Australia (MNDRIA)
Donate money
Donate to The MND Research Tissue Bank of Victoria
Donate Blood for the University of Sydney Motor Neurone Disease DNA Bank
Donate blood for the ANZAC Research Institute in Sydney
Join the Australian Motor Neurone Disease Registry
Clinical Trials
Introduction
What Is A Clinical Trial?
What Is A Study Protocol?
Why Are Clinical Trials Important?
Understanding Clinical Trial Phases
Who Sponsors Clinical Trials And Where Do They Take Place?
What Are The Benefits And Risks Of Participation In A Trial?
How Safe Are Clinical Trials?
What Is Informed Consent?
Questions To Ask Your Doctor If You Are Considering Participating In A Trial.
To Learn More .....
Research Funding
Research Links
Introduction
Clinical Research ALS/MND
ALS/MND Research
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Pharmaceutical & Bio Technology
Resources
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Factsheets
About These Factsheets
Carers
Grief and Bereavement
PEG Feeding
Kennedy's Disease
Genetic Testing for MND
Breathing and MND
Ventilation in MND
Swallowing Difficulties
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