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Welcome to MND Victoria

MND Victoria provides and promotes the best possible care and support for people living with Motor Neurone Disease (MND).

This includes a range of services to support people with MND, their carers, family, friends and health professionals.

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  • In 2012, I was one in a Million*

    Richard Chandler

    By Richard Chandler

    In early 2011 my brother noticed that my voice seemed slurred. Being a good brother he said nothing about the change but assumed that little brother, at age 77 had taken up the booze. As the year passed I recognised the voice change and also began to experience a dry cough and difficulties with swallowing. My GP eliminated medication problems and suspected a mini stroke so in about late October I had a referral to a neurologist.

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  • Edaravone approved to treat MND by US FDA

    Edaravone chemical structureOn 5 May 2017, the US Food and Drugs Administration (FDA) approved the drug edaravone (which will be marketed as Radicava™) for the treatment of amyotrophic lateral sclerosis (ALS) or motor neurone disease (MND) in the United States (US). It is the first drug to approved for MND/ALS in 22 years.

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  • ALS Quest - a survey looking at risk factors for MND

    Map of ALS Quest questionnaire's filled inResearchers at the University of Sydney are conducting a web-based study that is looking for potential risk factors for ALS/MND. The study consists of an online questionnaire, which is filled out by people both with and without ALS/MND. Community members and friends and relatives of ALS patients are encouraged to participate since controls are needed as much as people with ALS/MND. The results are then compared between people with ALS/MND and controls to look for risk factors that underlie the disease.

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