MND Victoria came into existence on October 13, 1981 at a meeting attended by a small group of people with MND and their families, staff of health and welfare groups and other concerned people.
Direction of MND Victoria is controlled by a State Council of twelve members of the Association of whom six must be people with MND, carers, or close associates. The Association is managed by an Executive Director and staff.
Professional staff are employed for delivery of services to people living with MND, their families, community workers, service providers and health professionals. In conducting the Association's activities and in the provision of services, the staff are assisted by over 100 generous and dedicated volunteers.
MND Victoria has regular contact with similar organisations in other States through the Motor Neurone Disease Association of Australia (MNDA), an umbrella group that serves as a forum for national communication and cooperation. Member organisations participate in a national MND Awareness Week, which is held in May each year.
Through its membership of MND Australia, the Victorian Association participates in an International Alliance of ALS/MND Associations and the global effort to conquer MND.