"We want to ensure that whatever rights are created for people in Victoria, those rights are also usable by people with motor neurone disease." – Rod Harris
Our CEO Rod Harris was invited to participate in discussions with the State Government in regards to the proposed end of life reforms.
MND Victoria is working to ensure that people with MND aren’t discriminated against if the proposed reforms take place.
Read more about the issue in the Age article, Assisted dying: Sufferers of motor neurone disease to be included under new laws.
A video of our CEO Rod Harris speaking about voluntary assisted dying, produced by the Victorian Department of Health and Human Services:
Motor Neurone Disease is like a thief in the night. It sneaks into your house and it steals your ability to walk, to talk, to breathe and to swallow and eventually it steals your life.
The preliminary papers that came out about voluntary assisted dying were around the mechanism of dying and the taking of the drug, and also around giving consent.
This is a piece of legislation that potentially creates rights for every Victorian and it’s important to get as many views as possible.
But what we’re concerned about is making sure that the legislation doesn’t discriminate against people who, for example, may not be able to speak and convey their wishes, may not be able to write and sign a document, may not be able to take a pill or a drug. It’s not an easy issue but it’s one that the more information that government have, the better the legislation will be, and the less chance there’ll be of people missing out on an opportunity to exercise a right that they may wish to use.
It’s your decision about how long you choose to live and whether you want to use this legislation to end your life. Our role is to help you live better for longer.