Until there's a cure ... there's care

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Rebecca Mason more than deserves the title of legend. Beck lives in Portland but makes the trip up to Geelong regularly to be with her best friend who has MND.


Went to a medical appointment recently at our local medical centre in Emerald, Vic, in my Frontier Tilt in Space wheelchair supplied by MND Vic ...


Not only is this disease so horrible to endure for the sufferer of MND. But the other side of the coin is the partner and family trying to cope with the emotional issues ...


This experience not only significantly impacted my life, but also helped me develop as a person and become who I am today and the person I will become tomorrow.


I can talk, I can walk, I can swallow, I can read, I can write, I can itch my head if I need to, I can laugh when I want to. I can wipe my own tears. You're thinking, what's the big deal?


A poem written by one of our volunteers about her experience of motor neurone disease ...

"It’s the understanding, knowing that when I phone you, MND Victoria always understands ...
I remember the first time I ever heard the words “Motor Neurone Disease”.
On March 28 this year my partner of 21 years died in my arms. She was 54 years old when diagnosed in June 2016
Last year’s Camino walk was raising money for those that can’t do it and it was in memory of my husband and his father.
My husband dances with me, but not as often as he used too, and he doesn’t like the fast songs.
Being a good brother he said nothing about the change but assumed that little brother, at age 77 had taken up the booze.
Neither John nor I expected this ... when the future with MND was explained it felt like we’d been hit by an express train.
When Cheryl received the diagnosis of MND in 2002 she was 32 years old, married and had a 3-year-old son, Mark.
I have been let’s say, "fortunate" enough to have had MND for nine years, instead of the average two ...
As Brett’s disease was progressing very fast, his life expectancy was about nine months.
Carol and I had retired from a lifetime of farming and were planning to grow old together ...