Until there's a cure ... there's care

sunset

What was it making my loved one walk like that?
And unwittingly stumble over the front door mat.
Why now and then did he look like he would trip?
We thought there was something wrong with his hip.
Things can't go on like this we need some advice
Well a trip to the doctor to check it out should suffice.

Not suspecting a report that would cause too much trouble
How wrong we were when the specialist burst our bubble.
"I have something to tell you, please listen" she said
The next words that were spoken filled us both with dread.
"I suspect we have a problem and the news is not the best
But to confirm the diagnosis you will need a specialised test"

And the test told us what the doctor thought it would be
So from that day forward we began to live with MND.
We know we can't beat it, there is no cure in sight
But by God we are both prepared to put up a good fight.
And the days since then haven't been all milk and honey
But mixed in with those are the times that were quite funny.

Like greeting the new neighbours who just moved in next door
With a, "Hello, you don't know me, but my husband's on the floor"
Now to make light of the tumble, well that wouldn't be right
But we all had a good laugh about our first meeting that night.
And most people are more than willing to help with a task
It's just up to us to learn it's o.k. to ask!

And in the darkest moments if you look you will find
A bright spot, and one particular thing comes to mind.
A parking space at the shops is a problem no more
Cause with our "Disabled Sticker" we pull up at the door.
It's how you look at situations, they can be good or bad
The choice is yours whether to be happy or sad.

We know the days ahead aren't as we had planned
But there are plenty of helpers to give us a hand.
The support network is there and advice is free
Just call the people in the office at M.N.D.A.V.
And never lose heart even in the days of sorrow
Cause the sun will come up on a new tomorrow.


Read more MND Stories:

/Caring%20and%20Sharing

Maureen, one of our wonderful volunteers and a past carer of someone living with motor neurone disease wrote this poem 'Caring and Sharing' about her experience during the time.

/Spotlight%20on%20Carers

My beautiful son Robert, Robbie to all who know him, was diagnosed in May 2017 and our world hasn't been the same. At the start, life wasn't too bad as Robbie was fiercely independent ...

/28%20Years%20Making%20A%20World%20Of%20Difference

As I step back from my role as a volunteer in the fundraising area, I’ve been thinking of all the past efforts that have helped make the Association so successful.

/Letter%20to%20Mark

I find myself engrossed in wonderful, now precious, memories. I laugh at flashbacks which come to mind. I laugh, then I cry, remembering you're gone.

/June's%20MND%20Story

I am 86 years old and up until June 2018, I was a reasonably healthy person who led an active life and loved communicating/ socialising with family and friends.

/MND%20Equipment%20Volunteers

Did you know that we have two equipment volunteers who help our Equipment team supporting people...

/An%20Ode%20to%20MND%20-%20A%20poem%20by%20Joy%20Blakely

An Ode to MND is a poem about daily life whilst living with motor neurone disease written by Joy who had MND.

/Marcus%20+%20Harry's%20MND%20Mission

My two boys Marcus (10 years old) and Harry (8 years old) unfortunately lost their nana to MND in April 2018.

/Cosmologist,%20space%20traveller,%20hero!

In my time at MND Victoria so far I have had the chance to engage with individuals whose resilience in the face of adversity is inspiring.

/Goodbye%20Friends

Brian was the last to go. He too died from motor neurone disease – that is the disease whereby the neurons stop working and cannot convey messages to the muscles ...

/Dean%20+%20Paula's%20MND%20Story

41 year old Dean is married to his childhood sweetheart Paula and father to two teenage boys ... in July 2015 their life came to a halt when Dean was diagnosed with MND.

/Pam's%20MND%20Story

When Pam’s son was diagnosed with MND three years ago, she didn’t know what to do. As a mother she felt so useless, she couldn’t do anything except love him.

/"Living%20the%20Dream"

Gavin McCann was diagnosed with motor neurone disease in January 2015. Being told this news is devastating for anyone. Gavin however, used this news to live out his long time dream.

/Andy's%20MND%20Journey

Andy's MND journey began after noticing difficulties with slurring speech. Medical investigations led to a local neurologist in May 2015, who suggested motor neurone disease ...

/Diagnosed%20with%20MND%20-%201%20June%202016

I was a stay at home single mum with 3 children aged 5, 7 and 9 in 2003 and my youngest was recovering from cancer treatment. I had left my husband in 2002 ...

/Kokoda%20Challenge%20-%20meet%20Beck%20Mason!

Rebecca Mason more than deserves the title of legend. Beck lives in Portland but makes the trip up to Geelong regularly to be with her best friend who has MND.

/Funny%20story!

Went to a medical appointment recently at our local medical centre in Emerald, Vic, in my Frontier Tilt in Space wheelchair supplied by MND Vic ...

/Karen%20and%20Geoff's%20MND%20Story

Not only is this disease so horrible to endure for the sufferer of MND. But the other side of the coin is the partner and family trying to cope with the emotional issues ...

/Always%20remain%20hopeful,%20fight%20and%20never%20give%20up

This experience not only significantly impacted my life, but also helped me develop as a person and become who I am today and the person I will become tomorrow.

/Dealing%20with%20Motor%20Neurone%20Disease

I can talk, I can walk, I can swallow, I can read, I can write, I can itch my head if I need to, I can laugh when I want to. I can wipe my own tears. You're thinking, what's the big deal?

/Mixed%20Emotions

A poem written by one of our volunteers about her experience of motor neurone disease ...

/Pam's%20MND%20story
"It’s the understanding, knowing that when I phone you, MND Victoria always understands ...
/My%20Story%20about%20MND%20and%20how%20it%20has%20Effected%20my%20Life
I remember the first time I ever heard the words “Motor Neurone Disease”.
/Liz%20and%20Rob's%20MND%20story
On March 28 this year my partner of 21 years died in my arms. She was 54 years old when diagnosed in June 2016
/Walking%20Back%20Home
Last year’s Camino walk was raising money for those that can’t do it and it was in memory of my husband and his father.
/Wolfgang’s%20journey%20and%20what%20to%20expect
My husband dances with me, but not as often as he used too, and he doesn’t like the fast songs.
/In%202012,%20I%20was%20one%20in%20a%20Million*
Being a good brother he said nothing about the change but assumed that little brother, at age 77 had taken up the booze.
/Joy's%20MND%20Story
Neither John nor I expected this ... when the future with MND was explained it felt like we’d been hit by an express train.
/Cheryl's%20MND%20story
When Cheryl received the diagnosis of MND in 2002 she was 32 years old, married and had a 3-year-old son, Mark.
/Living%20well%20with%20MND
I have been let’s say, "fortunate" enough to have had MND for nine years, instead of the average two ...
/Brett,%20Elizabeth%20and%20Anneka’s%20MND%20story
As Brett’s disease was progressing very fast, his life expectancy was about nine months.
/Barry%20and%20Carol’s%20MND%20story
Carol and I had retired from a lifetime of farming and were planning to grow old together ...