Until there's a cure ... there's care

Two ladies sitting on stone wall, sunset in the background

Introducing our first Kokoda Challenge participant!

The term 'legend' gets thrown around a lot, however Rebecca Mason more than deserves that title.

Beck lives in Portland but makes the trip up to Geelong on a regular basis to be with her best friend who is living with MND.

It may be for a couple of hours, couple of days or weeks, she will do whatever she can to make life easier and enjoyable for her friend and family. This care and support is invaluable and is really indicative of the quality of person that Beck is.

Beck is also what we would like to call a 'Champion Fundraiser'. For the last couple of years she has led her team known as Sisters and Brothers United in the annual Geelong walk. She organises fundraising events, spends her weekends selling MND merchandise, negotiating with local businesses to provide sponsorship and raises significant awareness throughout South West Victoria. She and her team have raised in excess of $70,000 in the last couple of years for all Victorian's living with MND!

Beck signed up for Kokoda as soon as registrations opened and although she wouldn't describe herself as an avid hiker, or even a once a year hiker... She decided this was a challenge she didn't want to miss out on. A personal challenge and one she knows will significantly help all Victorian's living with MND. She is pictured here on her first training hike. In Bali of all places! Her passion and determination will be infectious for the Kokoda group this year and we can't wait to see Beck complete this enormous challenge.

How Beck finds the time to fit everything in is astonishing (she also works and has her own family...). We are absolutely honoured to have her part of MND Victoria and our Kokoda challenge this year.

Please join us in supporting her journey and if you'd like to visit her fundraising page which also states her story around why she is doing what she is please visit - https://www.mycause.com.au/page/169074/beck-treks-kokoda-for-mnd

If you'd like information on how to take part in this year's trip please contact Daniel at This email address is being protected from spambots. You need JavaScript enabled to view it.

The Kokoda Challenge is running from 28 August to 5 September 2018, more information on our Events page or to secure your place, book now (please select 26 August 2018 - MND Charity Trek):

Book Now!


Read more MND stories:

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I find myself engrossed in wonderful, now precious, memories. I laugh at flashbacks which come to mind. I laugh, then I cry, remembering you're gone.

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An Ode to MND is a poem about daily life whilst living with motor neurone disease written by Joy who had MND.

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In my time at MND Victoria so far I have had the chance to engage with individuals whose resilience in the face of adversity is inspiring.

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Brian was the last to go. He too died from motor neurone disease – that is the disease whereby the neurons stop working and cannot convey messages to the muscles ...

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41 year old Dean is married to his childhood sweetheart Paula and father to two teenage boys ... in July 2015 their life came to a halt when Dean was diagnosed with MND.

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When Pam’s son was diagnosed with MND three years ago, she didn’t know what to do. As a mother she felt so useless, she couldn’t do anything except love him.

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Gavin McCann was diagnosed with motor neurone disease in January 2015. Being told this news is devastating for anyone. Gavin however, used this news to live out his long time dream.

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Andy's MND journey began after noticing difficulties with slurring speech. Medical investigations led to a local neurologist in May 2015, who suggested motor neurone disease ...

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I was a stay at home single mum with 3 children aged 5, 7 and 9 in 2003 and my youngest was recovering from cancer treatment. I had left my husband in 2002 ...

/Kokoda%20Challenge%20-%20meet%20Beck%20Mason!

Rebecca Mason more than deserves the title of legend. Beck lives in Portland but makes the trip up to Geelong regularly to be with her best friend who has MND.

/Funny%20story!

Went to a medical appointment recently at our local medical centre in Emerald, Vic, in my Frontier Tilt in Space wheelchair supplied by MND Vic ...

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Not only is this disease so horrible to endure for the sufferer of MND. But the other side of the coin is the partner and family trying to cope with the emotional issues ...

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This experience not only significantly impacted my life, but also helped me develop as a person and become who I am today and the person I will become tomorrow.

/Dealing%20with%20Motor%20Neurone%20Disease

I can talk, I can walk, I can swallow, I can read, I can write, I can itch my head if I need to, I can laugh when I want to. I can wipe my own tears. You're thinking, what's the big deal?

/Mixed%20Emotions

A poem written by one of our volunteers about her experience of motor neurone disease ...

/Pam's%20MND%20story
"It’s the understanding, knowing that when I phone you, MND Victoria always understands ...
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I remember the first time I ever heard the words “Motor Neurone Disease”.
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Last year’s Camino walk was raising money for those that can’t do it and it was in memory of my husband and his father.
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My husband dances with me, but not as often as he used too, and he doesn’t like the fast songs.
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Being a good brother he said nothing about the change but assumed that little brother, at age 77 had taken up the booze.
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Neither John nor I expected this ... when the future with MND was explained it felt like we’d been hit by an express train.
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When Cheryl received the diagnosis of MND in 2002 she was 32 years old, married and had a 3-year-old son, Mark.
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I have been let’s say, "fortunate" enough to have had MND for nine years, instead of the average two ...
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As Brett’s disease was progressing very fast, his life expectancy was about nine months.
/Barry%20and%20Carol’s%20MND%20story
Carol and I had retired from a lifetime of farming and were planning to grow old together ...