Until there's a cure ... there's care

Lady massaging man's foot

“It’s so rewarding, you can see it helps someone!”

When Pam’s son was diagnosed with MND three years ago, she didn’t know what to do. As a mother she felt so useless, she couldn’t do anything except love him.

This diagnosis came in Pam’s final year of work. She quickly realised she wasn’t going to hide away and just watch MND slowly take her son’s independence. She could always keep loving her son but she also wanted to help others with going through the same thing. Pam knew she wanted to volunteer after retiring from work.

Initially she wasn’t sure what she could do and it took 8 or 9 months for Pam to submit her volunteer paperwork to MND Victoria. With over 100 incredible volunteers that provide assistance in a range of different ways, Pam has now joined this great team.

Pam decided to take on two roles. One being a relief receptionist in which she loved and also as a hand and foot massage volunteer. Having worked in administration for a large part of her working life, the reception role came very naturally and Pam made an immediate impact in the office during her 1 shift per week. However, it was the massage role that really opened her eyes to how beneficial volunteering is. Pam received training from another volunteer and was then matched with two people living with motor neurone disease near to where she lived. These people had requested MND Victoria’s massage service in the weeks prior so it was perfect timing!

Pam says she is so delighted that she can make someone with MND smile just by providing gentle hand and foot massage. She can also see incredible value in just having a chat or a coffee with someone. “They have their beautiful families looking after them but just to have another person coming in, somebody that can make them feel a little bit nicer.” Pam is amazed how rewarding it is to be a volunteer for MND Victoria. She feels like she is truly making a difference. She feels a part of their family.

Pam is one of many fantastic volunteers that MND Victoria is so lucky to have. Volunteers make our organisation. Wonderful people that do amazing things to help people living with motor neurone disease.

Find out more about Volunteering with MND Victoria!


As I step back from my role as a volunteer in the fundraising area, I’ve been thinking of all the past efforts that have helped make the Association so successful.


I find myself engrossed in wonderful, now precious, memories. I laugh at flashbacks which come to mind. I laugh, then I cry, remembering you're gone.


I am 86 years old and up until June 2018, I was a reasonably healthy person who led an active life and loved communicating/ socialising with family and friends.


Did you know that we have two equipment volunteers who help our Equipment team supporting people...


An Ode to MND is a poem about daily life whilst living with motor neurone disease written by Joy who had MND.


My two boys Marcus (10 years old) and Harry (8 years old) unfortunately lost their nana to MND in April 2018.


In my time at MND Victoria so far I have had the chance to engage with individuals whose resilience in the face of adversity is inspiring.


Brian was the last to go. He too died from motor neurone disease – that is the disease whereby the neurons stop working and cannot convey messages to the muscles ...


41 year old Dean is married to his childhood sweetheart Paula and father to two teenage boys ... in July 2015 their life came to a halt when Dean was diagnosed with MND.


When Pam’s son was diagnosed with MND three years ago, she didn’t know what to do. As a mother she felt so useless, she couldn’t do anything except love him.


Gavin McCann was diagnosed with motor neurone disease in January 2015. Being told this news is devastating for anyone. Gavin however, used this news to live out his long time dream.


Andy's MND journey began after noticing difficulties with slurring speech. Medical investigations led to a local neurologist in May 2015, who suggested motor neurone disease ...


I was a stay at home single mum with 3 children aged 5, 7 and 9 in 2003 and my youngest was recovering from cancer treatment. I had left my husband in 2002 ...


Rebecca Mason more than deserves the title of legend. Beck lives in Portland but makes the trip up to Geelong regularly to be with her best friend who has MND.


Went to a medical appointment recently at our local medical centre in Emerald, Vic, in my Frontier Tilt in Space wheelchair supplied by MND Vic ...


Not only is this disease so horrible to endure for the sufferer of MND. But the other side of the coin is the partner and family trying to cope with the emotional issues ...


This experience not only significantly impacted my life, but also helped me develop as a person and become who I am today and the person I will become tomorrow.


I can talk, I can walk, I can swallow, I can read, I can write, I can itch my head if I need to, I can laugh when I want to. I can wipe my own tears. You're thinking, what's the big deal?


A poem written by one of our volunteers about her experience of motor neurone disease ...

"It’s the understanding, knowing that when I phone you, MND Victoria always understands ...
I remember the first time I ever heard the words “Motor Neurone Disease”.
On March 28 this year my partner of 21 years died in my arms. She was 54 years old when diagnosed in June 2016
Last year’s Camino walk was raising money for those that can’t do it and it was in memory of my husband and his father.
My husband dances with me, but not as often as he used too, and he doesn’t like the fast songs.
Being a good brother he said nothing about the change but assumed that little brother, at age 77 had taken up the booze.
Neither John nor I expected this ... when the future with MND was explained it felt like we’d been hit by an express train.
When Cheryl received the diagnosis of MND in 2002 she was 32 years old, married and had a 3-year-old son, Mark.
I have been let’s say, "fortunate" enough to have had MND for nine years, instead of the average two ...
As Brett’s disease was progressing very fast, his life expectancy was about nine months.
Carol and I had retired from a lifetime of farming and were planning to grow old together ...