Until there's a cure ... there's care

Our volunteers work both with people with MND and across our entire organisation. Did you know that we have two equipment volunteers who help our Equipment team supporting people to access the equipment they require? We are very grateful to John and Margaret for their dedication to helping people with MND.

Margaret says ... "I have been an MND volunteer for six years and it was always my intention that, after I retired from my position as a Personal Assistant to a Hedge Funds investor, I would volunteer at MND. My father lived with MND and passed away in 1980, aged 63, and at that time our family didn’t realise, and we weren’t given any information about MND, and of the horrific consequences of the disease. At that time there was no MND Association, so no support and no advice.

MargaretI am in the Canterbury office every Monday for five hours and, as well as reception and administration duties, I assist David, Kathy and Sandra in Equipment Service. Every week they arrange for around 40-45 pieces of equipment to be delivered to MND clients. My role is to ring or email each client to confirm the equipment has been received and also ensure that there are no problems or concerns. Depending on the amount of equipment distributed, this can take up to two hours. I enjoy my interaction with the clients and also the Equipment Service team.

After I finish contacting the clients I enter receipt of the equipment into the iCase database and this task can take up to two hours. This means that I am assisting Equipment Service for around four hours each week and this enables them to concentrate on getting the equipment out and dealing with other tasks and any other issues that may arise. During this time I am sitting on Reception, answering the switchboard, franking and then posting the daily letters and dealing with any administration tasks as they arise. My role as an MND volunteer is very rewarding and fulfilling and I enjoy working alongside the MND staff who are very dedicated and caring. I am sure Dad would have benefited from and enjoyed the many valuable services that MND Victoria is currently providing to our clients."

JohnJohn writes ... "I am a Friday volunteer in the equipment department at MND Canterbury. I do data entry, help update client orders and the collection and dispatch of equipment. I have volunteered for many years at various MND events and upon retirement took on a more regular role. I have always found that all the staff and other volunteers are very friendly and inclusive and would highly recommend to anybody with some time to spare to see what roles are available.

I see what a difference any volunteering makes to the overall running of the Association and its ability to give more care to the people living with MND."

Would you like to volunteer with us? Find out more about our Current volunteer opportunities.

Read more MND stories:


Gary has been involved with MND Victoria since the 90s. He has been converting MND Victoria Newsletter into online news for worldwide audiences for 10 years...


Maureen, one of our wonderful volunteers and a past carer of someone living with motor neurone disease wrote this poem 'Caring and Sharing' about her experience during the time.


My beautiful son Robert, Robbie to all who know him, was diagnosed in May 2017 and our world hasn't been the same. At the start, life wasn't too bad as Robbie was fiercely independent ...


As I step back from my role as a volunteer in the fundraising area, I’ve been thinking of all the past efforts that have helped make the Association so successful.


I find myself engrossed in wonderful, now precious, memories. I laugh at flashbacks which come to mind. I laugh, then I cry, remembering you're gone.


I am 86 years old and up until June 2018, I was a reasonably healthy person who led an active life and loved communicating/ socialising with family and friends.


Did you know that we have two equipment volunteers who help our Equipment team supporting people...


An Ode to MND is a poem about daily life whilst living with motor neurone disease written by Joy who had MND.


My two boys Marcus (10 years old) and Harry (8 years old) unfortunately lost their nana to MND in April 2018.


In my time at MND Victoria so far I have had the chance to engage with individuals whose resilience in the face of adversity is inspiring.


Brian was the last to go. He too died from motor neurone disease – that is the disease whereby the neurons stop working and cannot convey messages to the muscles ...


41 year old Dean is married to his childhood sweetheart Paula and father to two teenage boys ... in July 2015 their life came to a halt when Dean was diagnosed with MND.


When Pam’s son was diagnosed with MND three years ago, she didn’t know what to do. As a mother she felt so useless, she couldn’t do anything except love him.


Gavin McCann was diagnosed with motor neurone disease in January 2015. Being told this news is devastating for anyone. Gavin however, used this news to live out his long time dream.


Andy's MND journey began after noticing difficulties with slurring speech. Medical investigations led to a local neurologist in May 2015, who suggested motor neurone disease ...


I was a stay at home single mum with 3 children aged 5, 7 and 9 in 2003 and my youngest was recovering from cancer treatment. I had left my husband in 2002 ...


Rebecca Mason more than deserves the title of legend. Beck lives in Portland but makes the trip up to Geelong regularly to be with her best friend who has MND.


Went to a medical appointment recently at our local medical centre in Emerald, Vic, in my Frontier Tilt in Space wheelchair supplied by MND Vic ...


Not only is this disease so horrible to endure for the sufferer of MND. But the other side of the coin is the partner and family trying to cope with the emotional issues ...


This experience not only significantly impacted my life, but also helped me develop as a person and become who I am today and the person I will become tomorrow.


I can talk, I can walk, I can swallow, I can read, I can write, I can itch my head if I need to, I can laugh when I want to. I can wipe my own tears. You're thinking, what's the big deal?


A poem written by one of our volunteers about her experience of motor neurone disease ...

"It’s the understanding, knowing that when I phone you, MND Victoria always understands ...
I remember the first time I ever heard the words “Motor Neurone Disease”.
On March 28 this year my partner of 21 years died in my arms. She was 54 years old when diagnosed in June 2016
Last year’s Camino walk was raising money for those that can’t do it and it was in memory of my husband and his father.
My husband dances with me, but not as often as he used too, and he doesn’t like the fast songs.
Being a good brother he said nothing about the change but assumed that little brother, at age 77 had taken up the booze.
Neither John nor I expected this ... when the future with MND was explained it felt like we’d been hit by an express train.
When Cheryl received the diagnosis of MND in 2002 she was 32 years old, married and had a 3-year-old son, Mark.
I have been let’s say, "fortunate" enough to have had MND for nine years, instead of the average two ...
As Brett’s disease was progressing very fast, his life expectancy was about nine months.
Carol and I had retired from a lifetime of farming and were planning to grow old together ...