Hello my name is June. I am 86 years old and up until June 2018, I was a reasonably healthy person who led an active life and loved communicating/ socialising with family and friends. I still live at home independently in a rural property in the Outer Eastern suburbs of Melbourne, luckily I’m also still able to drive!
Unfortunately, soon after being diagnosed with Motor Neurone Disease (Bulbar Onset), I have already experienced significant changes in my speech and my swallowing. I have found these changes extremely frustrating/distressing, given I am such a proud and independent person.
My family registered me with MND Victoria and shortly after I received a visit from my MND Advisor (Rachel). She has supported my family and myself to access the supports I need to understand what services are out there and she has assisted us in accessing them.
At no cost to myself, MND Victoria has sent me a nebuliser, a boogie board, a personal alarm and an iPad. All of these items have helped me enormously and I know I can access further equipment as I need it.
I decided that the only way I could say thanks and show my appreciation to MND Victoria for all their caring support, was to hold an afternoon tea to raise awareness and some money in the way of donations.
So, on November 25th, I prepared a lovely afternoon tea in my garden. Family and friends came, gave generously, had a lovely time and best of all we raised $2100! I’m sure this money will be used to help others who have been diagnosed with MND.
The people who work and volunteer at MND VIC are amazing people. Thank you all!
If you would like to support our work, find out how you can Get involved with MND Victoria!